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Staglin event billed as a top charity fundraiser
Left to Right: Ryan Seacrest, Shari and Garen Staglin of Staglin Family Vineyards and Joy Craft of Woodside, Ca. raise a toast after Craft’s record setting $1,050,000 bid. Jorgen Gulliksen/Register | Buy photos
Saturday, August 16, 2008
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Like many teens, Brandon Staglin of Staglin Family Vineyard seized the summer of 1990. But after taking a week-long scuba diving trip with a friend, the return to his parents’ house was anything but ordinary. Tucked into his familiar bed, Staglin was about to take a terrifying journey.

“I had my first psychotic ‘episode’ in the summer of 1990. It was the A-number-one scariest thing I have ever experienced. ... It was like half of my head suddenly disappeared, the right half. ... I was awake for the next four days, wandering the local streets in search of the part of me I thought I had lost.”
Staglin was diagnosed with schizophrenia at age 18.

Now 36, Staglin joins his family — including parents, Garen and Shari and sister, Shannon — in the mission of spreading awareness about mental illness and raising funds for the research of brain disorders like schizophrenia, bipolar disorder and depression. Including grants from the National Institute of Mental Health, the annual Staglin Family Music Festival for Mental Health has amassed more than $53 million for such research since 1994, “making the festival the highest grossing fundraising event related to wine without an auction,” said Tom Fuller, the Staglins’ publicist.
Renowned medical institutions across the nation benefit from the festival’s proceeds. Some recipients include researchers at the UCSF Center for Neurobiology and Psychiatry, the International Prodromal Research Network, the National Alliance for Research on Schizophrenia and Depression, the UCLA Center for the Assessment and Prevention of Prodromal States, the University of Texas Southwestern Medical Center, the Roskamp Institute, Aldea Inc., Stanford University and the University of Southern Florida.

Working toward the common goals of individually-tailored treatments and a cure for schizophrenia and other mental illnesses, researchers funded by festival proceeds are obligated to share research information. In the meantime, the Staglins are optimistic about the eventual development of future screening techniques which would prevent mental illnesses before they strike.
“In contrast to ten years ago, when we only saw (the illnesses) after the fact, now we may be able to prevent their onset. People should understand that there’s hope,” said Garen Staglin. “For a long time, there was no hope.”

A primary focus of the Staglin Music Festival is to raise money to conquer mental illness, but its purpose is twofold. Although many brain disorders such as schizophrenia occur equally in populations throughout the world, millions keep silent about their conditions. In sharing their story and encouraging others to do the same, the Staglins are doing their part to battle the stigma of mental illness.

The unseen impact of mental illness

The conditions’ impact on the productivity of the American workforce is profound.

The onset of depression, schizophrenia and other brain disorders often occurs during people’s productive years, with more than 26 percent of American adults — about 57 million people — “suffering from a diagnosable mental disorder in a given year,” according to the National Institute of Mental Health.

A study by the World Health Organization, the World Bank and Harvard University “reveal(s) that mental illness, including suicide, accounts for over 15 percent of the burden of disease in established market economies ... more than the disease burden caused by all cancers,” according to NIMH.Complicating the vast human and fiscal impacts of mental illness is the often trial and error nature of treatment, which can be especially challenging for people living with more than one mental illness. Jaye Vanderhurst, director of Napa County Public Health’s Mental Health Division, said it is not uncommon for adults seeking mental health treatment through the county to have multiple mental health diagnoses.

Of adults receiving services through the organization, 305 individuals, or about 17 percent, have been diagnosed with schizophrenia, while 260 individuals, or approximately 14 percent, live with Bipolar Disorder, she said, adding that 274 people — about 15 percent — are diagnosed with depression.

In children seeking mental health services through the county, schizophrenia is extremely rare, but children’s rates of bipolar disorder and depression are similar to those of their adult counterparts, Vanderhurst said.
6 comment(s)

steph wrote on Aug 16, 2008 12:18 AM:

" Such a worthwhile charity!

The suffering of those with schizophrenia--and their families, too--is tremendous.

The Staglins are bringing hope to so many. Brandon is an inspiration!

Thanks "

Desperately Seeking Exasperation wrote on Aug 16, 2008 4:34 AM:

" It is so great what Garren, Shari, Brandon, and Shannon are doing for the mental health community. The Staglin's are a fantastic representation of a family that are able to use their success to help millions of others in need. Cheers to the many accomplishments you have in no doubt help the researchers achieve and also to the continued success of the Music Festival. -BigErn (in France) "

funnyme wrote on Aug 16, 2008 6:19 AM:

" Who is the "main" artist in this year's Festival?
Last year were Ms. Gladys Knight and her band. "

vocal-de-local wrote on Aug 16, 2008 12:38 PM:

" The Staglins are remarkable people who are using their resources to bring real change. There are so many biological causes of mental disease (go to OMIM) but the brakes were applied by so many who were stuck on the idea of just"willing it away". As a result, it took a great deal longer to get to this point of accepting biochemical involvement. Money can now be applied directly toward biological/gene research. The great thing is, the Staglins have control of where the money is applied.

My great grandpa was mentally ill, probably with bipolar, although back then they didn't know how to diagnose it. He committed suicide. One of my siblings, her daughter, my son all inherited the gene. My mothers cousin and almost ALL of her offspring inherited it. We resemble the Hemingway's. The problem is so severe down that line that they cannot function well enough to adapt to the world today.

Some of these genes cause apoptosis in the brain during adolescence. This is a normal process during puberty because the brain gets rid of tissue it no longer needs. Unfortunately, some genes instruct for too much snipping away of tissue. This is one really good reason why teens should NEVER smoke pot during this period of time. If you have the excess "snipping away" gene, smoking pot can accelerate it.

On a personal note: through perseverance, we discovered the actual biochemical causes related to my son. The treatment is simple but longterm. We were lucky. He is doing great today. He obtained education, has a highly skilled job and is self sufficient.

Also know that some of these genes are involved with creativity. We do not want to entirely eliminate them from the gene pool, just tame them! "

mom2priceboys wrote on Aug 16, 2008 6:13 PM:

" I'm not trying to put a damper on all the good that will be done with this money, but where does it go? Does it go to people who because they cannot continue with full-time benefited jobs that they must take medi-cal. The services can be so limiting especially for the families of children who suffer. I myself am challenged with mental health issues but more so by a son diagnosed with Bi-polar that I can only work when I am not needed to sit beside him in his classroom so he can get the benefit of an education. Most employers are not willing to put up with such "nonsense" "

vocal-de-local wrote on Aug 16, 2008 10:38 PM:

" mom2priceboys, it's frustrating I'm sure. But do try to remain strong for your child. The school system is often not nice or particularly patient with these children. You need to remain an advocate for your child. I held my son's hand all the way through the school system. I had no qualms about being protective, even when I was accused of being over protective, or pulling him out of a dysfunctional school environment. These kids are much more secure knowing that no matter what, someone will be there for them.

What's important about what the Staglins are doing is that by putting resources toward an actual "cause", there is real potential for a cure, not just band aid solutions for those who are born with these brain diseases. Your child may or may not benefit, but your grandchildren very well could. At the very least, with insight into gene involvement, they will have a much greater understanding of it and may be able to customize medication in the future.

and btw, when a child is diagnosed with bipolar, the etiology is quite a bit different from adult onset bipolar. Learn as much as you can about it. "

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