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The call in the night
Tuesday, June 12, 2007
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The call in the night

After my happy reunion with my sister in San Francisco, I immediately e-mailed our brother Joe in Indiana. I knew he would feast on the details.
Days passed yet he didn’t respond. Even more strange, two earlier e-mails from the previous month had gone unanswered.

My best explanation: Joe was scrambling to get his construction business humming after being hobbled for several months by foot surgery and back pain.
Still, the silence was unsettling. I considered calling him, but that’s not how we bros do things. A call would have been too much in his face.

My relationship with Joe has always been special. We were Mom’s first two children. Growing up the same sex, two years apart, powerful bonds were forged. Before I was a husband, father, reporter, I was Joe’s big brother.
As we were going to bed last Saturday night the phone rang. Cheryl picked up. It was Joe.

When Cheryl said his name, my heart skipped a beat. I calculated the time in Indiana. It was after midnight. Was this one of those dreaded calls in the night?

“We were worried about you,” Cheryl said, then handed the phone to me.

Joe’s voice was almost unrecognizable. Weak and raspy.

He was in the hospital, he said. Three days earlier doctors had found the source of his back pain. Bone cancer. Multiple myeloma.

Our phone connection suddenly broke up. Two brothers were sobbing.

Composing himself, Joe talked an emotional blue streak. His back pain had become excruciating in recent weeks. Twice he was lifted out of his house on sheets by paramedics. Unable to get a diagnosis or relief, he had thought of suicide.

Now he had his diagnosis. At age 58, he was staring at the limits of his mortality.

While multiple myeloma isn’t curable, it is treatable, Joe said. He had started a new chemo drug that might knock the cancer back on its heels.

Joe told of breaking the news to his kids, the youngest of whom is in elementary school. The older ones reacted beautifully, he said. Parent-child grievances faded. Flood gates of tears and love opened.

I was bereft of words. How could this be happening? My younger brother was such a powerfully built man, with a life force to match.

A week later, I’m still reeling. I think of Joe in the middle of the night, driving to work, at council meetings. In entirely inappropriate situations, I dab at tears.

I can’t overstate Joe’s importance to me. We emerged from the same childhood caldron. Ours was a special strain of Courtney cultural DNA.

Although we’ve seen each other only occasionally since childhood, these gaps never alarmed me. I always knew we would cycle around as we did last summer when we joined his new family for a beach vacation.

But now this nasty cancer. I’m stunned that it’s happening not only to Joe but to our generation. We’re the still youthful baby boomers. Aren’t we?

When time came for us Courtney siblings to confront eternity, I’d always assumed that I, the first-born, would be first again. Joe’s situation seemed a perversion of the natural order.

Joe doesn’t yet have a prognosis. Cheryl has friends in medical circles who say there is reason for optimism. Plenty of people with multiple myeloma are in remission. If the drug is going to work, we should know soon enough.

Be optimistic, Cheryl says. Joe could have many more years. We should focus on the best outcome.

I appreciate what she is saying, but I don’t have it in me to be optimistic right now. I feel only misery.

I’m afraid for Joe. I ache for his family. I ache for me.
8 comment(s)

L Hughes wrote on Jun 10, 2007 5:40 AM:

" Kevin, I advise you to also be checked for MM. My older brother was diagnosed February 2006, passed away May 2007. Both me and my younger brother were told by our doctors that this stuff does not run in families. Guess what! My younger brother was diagnosed with MM April 2007. I am now being examined, but it appears that I'm ok. Kevin, go get checked. Good Luck, L. Hughes "

Sister wrote on Jun 10, 2007 8:00 AM:

" Kevin, you made me cry this morning. I could feel your pain while reading your column today. I have two brothers who have both almost died. One from heart surgery and the other from a motorcycle accident. I live in fear of the day I might get a phone call like you did. My brothers mean the world to me. You and your brother are in my thoughts and prayers. Take care. "

Steve wrote on Jun 10, 2007 12:15 PM:

" I to have mm and was diagnosed after barely being able to walk. With the help of Revlimid I an now in complete remission and able to walk without assistance. It amazes me how long it takes to get the correct diagnosis. The medical communities seems to work in silos of their own specialties and cannot see beyond that. "

Sharon, Pennsylvania wrote on Jun 10, 2007 5:05 PM:

" Kevin, my heart goes out to you. I lost my dad to MM 3 1/2 years ago. His first symptom was abnormal WBC/RBC labs during routine screening. A bone marrow biopsy a few months later did NOT confirm MM and repeated visits to docs only reassured him that he was fine. Eight months later he had repeated back pain and even an MRI and bone scan missed a tumor on his spine (at T-10). Three months later he had to be carried out of the house by ambulance because he couldn't walk. He was diagnosed in the ER. I was 2 weeks pregnant with my first child. He died 3 months later. While this is not a happy, encouraging commment, I DO want to stress how important staging and typing is for this cancer. By the time Dad was diagnosed, his MM was really bad. He also had less common but much more progressive type of MM called "plasmablastic myeloma". The expectancy rate for this one is only 3-6 months and this can only be typed through a bone marrow biopsy. I do have to say that he was put on Velcade and this seemed to help. So many more drugs and therapies have made their way to market since my dad's death. Please stay positive. While there is indeed NO cure for this horrible cancer, the treatments have increased life expectancy and quality. Get active in benefit walk/runs if you can and get educated. My dad was one of my best friends and I miss him every day. I can only imagine what it must be like for you to learn of your brother's diagnosis. Too few people know about how serious this cancer is and, unfortunately, its on the rise (note: see stories on MM risk linked to the WTC volunteers). I wish you and your brother's families all of the best. Be strong and know that there are others out there who share the pain. Sharon "

Duane wrote on Jun 11, 2007 8:42 AM:

" Kevin I was diagnosed with MM on Dec 15th 2004. I was treated with Thilomide and Decadron for 10 months. I have been in complete remission since Sept 2005. This beast is very treatable and one can lead a pretty normal life with it. "

Mary Franklin wrote on Jun 12, 2007 11:54 AM:

" My sister has had myeloma for almost ten years and is still going strong and she is 80. I too have it (very unusual) and am doing well (very rare for familial inheritance, but ...!). It helped me when I was diagnosed because my sister got it five years earlier and was managing well. Between us we have had several chemo regimens and a stem cell transplants. There are MANY new treatments, so please be hopeful. I do suggest that you see a myeloma specialist at a teaching hospital (we both did). You can still work with your local oncologist. "

LLOYD wrote on Jun 15, 2007 2:52 AM:

" I have had mm since 2001. Didn't start chemo till last year. The pain in my bones started going away in a few days and was gone within a few weeks when I took a phosphor tablets. I have been off chemo since Feb, but will probably go back on next week. ( It makes me tired.) I feel great now. Just got back from a week camping trip with my wife. "

Napa Transplant wrote on Jun 16, 2007 6:31 PM:

" I hope your brother gets outstanding medical care in his community for this truly life threatening diagnosis. "

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